The FTD Prevention Initiative (FPI) brings together genetic FTD cohorts from across Europe, North America, South America and Australasia.

It is is led by Dr Jonathan Rohrer at UCL in the UK, and Professor Adam Boxer at UCSF in the US.

The Genetic FTD Initiative (GENFI) in Europe and Canada and the ALLFTD study in US and Canada were the founding members of the FPI. Other members include the Australian Dominantly Inherited Non-Alzheimer Dementias (DINAD), New Zealand Genetic FTD study (FTDGenZ), and Research Dementia Latin America (ReDLat) studies.

We link in with patient advocacy groups and foundations involved in FTD research.