Public and Participants

Public and Participants

The voice of the participant and their family is central to our work. We continually work with our participants from across the familial FTD consortia to better understand what our focus should be and how we can improve clinical trial design.

  • If you are interested in understanding more about the FPI or would like to be a participant in one of the familial FTD cohort studies please email Lucy Russell at l.russell@ucl.ac.uk.
  • More information about FTD can be found through the Association for FTD.
  • More information about current studies can be found the FTD Disorders Registry.